Thanks for this piece that peeks into the world of passing, literally the dilemma of the curious & cooperative patient facing death on her own terms.

My music mentor David Allen Kaynor had ALS and passed last year. He composed his last tunes using an eye typing program.
See the tribute dance held in his honor here. The dancing starts about 4 minutes in.

https://youtu.be/CJpX_6tKaiI

I was there in the Back Row Band, mentored by David .

My own journey living with late-stage long Lyme often feels like a similar slog through the looking-good performances that convince others of the unreality of my journey.

The audio book Journey of Souls by Michael Newton Ph.D. made a big difference. I’m about to embark on my fourth reading. Each time I feel much better about the love affair I’m developing with life. As my body keeps giving it’s last, last, and I mean this the last chance warning call.